My dad is
mute. Well, he can talk with the aid of a speaking machine. He is a neck breather. Lost his voice to cancer in 2001.
My dad and I would communicate through email as they lived across town and with smart phones we would communicate almost instantly. With dads speaking machine I can understand him 99.9% of the time. On rare occasions, strangers can understand him and others don't understand a single word.
Mom and dad came from Europe in 1967. On Canada Day in fact. July 1, 1967. So dad's English was a second language. Actually, it was like his 8th language he learned. So pops spelling wasn't always the best. So, if I got an email from pop, I knew it wasn't the best spelling. This particular day his email frightened me.
Dad's email was broken, gibberish and made no sense. I had just seen my folks about 1.5 weeks prior maybe 2 weeks and things appeared somewhat normal. Despite me having a gut feeling the last dinner I had over there, something wasn't right.
I got the email around 9 pm. I texted my wife the email made no sense and I was going to drive over to their place to check up on them. My wife was at work.
I drove over. And was horrified with what I saw.
My dad on the couch in his underwear. So weak, it took him 10 min to get him to say 3 words to me. They were " mom, sleep, week". I tried to get dad to drink a bottle of water but he was s weak he couldn't even hold the bottle of water. I walked over to the kitchen and it was in total disree. My folks have been impeccably tidy, neat, organized clean people. The kitchen had food over the stove, maggots and fruit flies. It was bad. It was a mess. I ran to the bedroom and my mom was asleep. I woke her up and she knew who I was but nothing else. Every answer she gave to any question was I don't know.
I called 911 and had 2 ambulances come. Because they were not in any trauma other than cognitive and were breathing and somewhat talking. They did not rush over. In fact, I wanted 30-45 min for an ambulance. Then only one showed. While we waited my mom was crying and didn't want to leave. My dad was able to nod to questions and turns out my mom had been asleep for 7 days. Literally.The paramedics then ordered a second ambulance. There was NO WAY I could take both my parents to hospital.
Since dad relied on mom for 52 years breakfast lunch and dinner, Dad was starving, dehydrated and weak. His ankles swollen and barely able to walk. Mom knew who I and dad were but that was it.
My wife rushed over from work, grabbed their dog and went home while I went to emergency.
So there I am with my mom on my left, and my dad on my right in two beds at the hospital.
Testing both my parents for obvious signs of cognitive and health issues. They took my mom for a cat scan. I spent the night sleeping in emerg on a chair with them both, Well I didn't sleep.
Doctors took mom away for the cat scan and pulled me aside. Since dad wasn't cognitively all there from lack of food and water, They spoke to me. They told me mom had 4 lesions on her brain. And they were going to give her an MRI next. At 8 am. They told me my mom had 25 lesions on her brain, a large tumar on her lungs, One on her adrenal gland and in her liver too. They said she had 30-60 days to live. Maybe 60 with radiation.
They suggested radiation to start aggressive treatment for the next 5 days starting Monday. It was Friday now.
I was crushed, By this time they had given mom some medication to reduce the swelling in her brain. And she was now sorta able to cognitively speak normal and answer questions. And it is true, she was asleep for 7 days. No bathroom, no food, Just sleep. She said she had a bad headache and went to bed, Last she remembered. Dad did not know her prognosis. I didn't want to tell him because he wasn't well and I wanted a doctor to explain to him for validity. And they did after I went home.
I now had to tell my son and wife.
I went to their place and got clothes, and a few things. Rushed home on no sleep and did a few things that needed to be done. And back to the hospital. I had been awake 40+ hrs at this point.
This was an extremely tough time because we just lost our rescue dog and my son had left home few months prior. My wife and I had to make decisions for both my parents as I was the ONLY one in their life for the last 16 years. It was all on me. Everything. Right to the end.
When I arrived back at the hospital they had moved dad to the 4th floor. General medicine area. And mom to the 7th floor. Neurology.
When they told me where my mom was I had a hard time. Not only was it the same room I recovered from brain surgery in...it was the same bed. Same Doctors, nurses, staff...
We went at got dad in a wheel chair. And brought him to mom everyday. Dad was very upset. As I was too. He got told she was dying and his best friend of 52 years was dying. Mom was told before we got there. Yet the entire time no one ever talked about it to her. I asked mom once if she was afraid to die and before I could blink it was a stern NO.
Mom was right with God and had no fear of dying.
My mom was an emotional person but the best-hearted person you would ever meet. She loved and I mean loved cooking for people. She loved to see you leave full of food when visiting her.
Mom had watched a sibling die of starvation as a child. She had it really really rough as a kid. And it was important no one ever left hungry. My mom thrived on being a giver.
As mom laid there day after day, she knew what was happening but we didn't talk about it. No one wanted to upset her. She denied wanting to be in palliative because psychologically she knew. There was a waiting list to get up there and she didn't want to go.
She had old friends come and visit her and only once she got really upset. I'd rather not mention it because it was cowardly.
Every day I was afraid is this the last time I'll speak to mom? Some days you would see her slip away. Some days she seemed fine. By the third week, we noticed a fast decline.
We were also cleaning out their place. Selling 75% of their furniture, selling mine. And packing their stuff. We also had to hire a renovator to gut the basement and make it nice for dad to live in.
This same piece of shit renovator, 2 days after mom passed stole my mom's painting, took the balance of the money and ran off with a completely fucked up job unfinished and done very very poorly.
I gave my mom a haircut and it was the hardest thing I had to do. It was her last. She cried as I hugged her after. I picked up some hair and put it in my pocket.
My son would come to visit but stopped coming about the 3rd week. I'm sure it was as equally as hard on him but as a teenager, they deal with loss differently.
My mom did fall off the commode when she was there and turns out she fractured her spine and she was in grave pain.
The hospital was doing a fine job taking care of both my parents. Only once I lost it on a doctor and was close to being arrested.
They were transporting my mom to another hospital for radiation. To slow down cancer and one day they wanted to take my mom and leave her at the other hospital. I went ballistic on one doctor screaming at him telling him you do NOT remove a dying woman from her husband to another hospital! I'm sure my threat to his well being changed his mind. What fucktard takes a dying woman with a month to live away from her husband who can not visit her??? He knew my dad was on 4th floor and mom was on 7th but he said it is not convenient for us to keep them both here. I changed his mind. I am not a violent person but I got angry and ugly fast.
Mom spent 31 days in the same hospital bed I laid in. 31 st day she went to palliative. By this time dad was staying with us. He spent 14 days in the hospital. And was getting better every day with his health.
They asked if we wanted her to be comfortable but the trade off was she would be asleep or out of it while she was in her final time.
We all agreed she was in pain and needed relief. But the trade off was that she wasn't with us anymore to talk to.
That last day the staff told us she probably had a week. But we knew something was up. The day before my dad kissed my mom. And she kissed dad back. I finally had a chance to be alone with mom. As always dad or my wife was there. I promised mom I would take care of dad and the dog, and it was ok to go. That we loved her and would miss her. Her eyes were shut. I wasn't sure if she even heard me then her eyes opened for 1/2 a nano second and she lipped "I love you" to me. It was the last words she ever spoke.
The next day I had a gut feeling. We stayed to about 7 pm. At 9:30 we got a call to hurry over NOW.
........as I got off the elevator and seen the look on the nurse's face I knew she had just passed. We missed her by 5 min. I think mom wanted it that way. She didn't want us to see her go.
We spent the next 2 hrs sobbing over her and my dad wanted to leave. It was so hard because my mom was to be cremated and no funeral. It was the last time I was ever going to see her. Ever.
I was the last one in the room and left. As I stood in the hallway, The nurse was speaking to my dad and wife ahead of me.
All of a sudden I saw my mom pop out of the room on a yellow sweater, With a glow around her head almost like a halo but more light brightness. She waved and smiled at me.
I rubbed me eyes in total disbleif thinking I am under duress and just sad. And opened my eyes again and mom smiled at me again and waived and then she vanished.
I could abosiltely care or less if a single human being believes me what I seen. I know what I saw. And don't care what anyone thinks. It was mom saying bye to me.
It was probably the hardest thing I had gone through in life with loss. I had lost friends, I had lost my dog, I had lost my health but no one prepares you for this kinda loss. Compiled with my dad, renovator, no funeral. Cremation business who didn't release my moms remains for a week and all the other stuff going on was tough. I did not start to grieve for some time to come.
It is only now I am able to talk about what happened. I smile more now thinking of mom then cry in sadness she is gone.
It taught me a lot. Life is short, precious and once someone is gone there is no righting a wrong, there is no more sorry's. No more making up or taking back or whatever. The time is now.
Mind you I live with the clearest of conscious. I loved my mom very much. I am so glad I spent all those years being there for her when others were not. I got to share 43 years of my life with my mom, And she gave me so much and sacrificed an incredible amount for her children. More than most.
I only wish I got sick after she passed. I can't imagine how hard it was on her seeing me suffer and go through all the brain surgeries etc. No parent ever likes seeing their child suffer no matter what age.
As sad as it was and as quick as things happened. I am glad I was there for mom until the very end.
This blog probably has no meaning to you but it was for me. And until you had a parent you love pass I guess it doesn't apply to you.And I hope it doesn't for a long time.
I miss you momma