Friday, December 30, 2016

We did it, thank you to everyone who reads this.

Wow, I can't believe this. I am so humbled beyond any measure of words. It is kinda surreal and hard to digest but thank you.

Tuesday, December 27, 2016

Trippin' With Leigh Documentary on Swearnet.com

This blog today is about the multi-talented actor and singer Leigh MacInnis who also happens to be my friend. He is known for his hilarious portrayal of the character's Don and Donna on Trailer Park Boys seasons 8 to 10.

Monday, November 21, 2016

Started a new video series. Filming life of "People In Pain"

This is a project I have wanted to start for awhile. I may have been one of the original cluster heads filming myself and posting videos on YouTube and there are many Vloggers out there filming their daily life. But I have not seen videos of people living in pain.

Thursday, October 6, 2016

The cost of being sick

I won't bore or shock you with actual numbers but if you need to know message me. The amount I live on per year is way beyond below poverty level. Fact. This is a fact that almost all Cluster Heads, really anyone who is sick deals with unless you have some sort of great pension plan or long-term disability from the company you worked for. That isn't the case for me. That isn't the case for many.
It's a sad reality that almost every one of us looses our careers, homes, relationships due to hardships brought on by costs attributed to being sick.

Monday, September 19, 2016

PTSD Post Traumatic Stress Disorder

Imagine being on a roller coaster without a lap bar or shoulder harness, spinning upside down, swirled around in circles like a Gravatron at a fair and the floor drops. You want to pass out. You have no control. You feel frozen in time yet want to die or the ride to stop at any cost. You can not control the ride, your emotions, thoughts, feelings and feel 110% helpless. All that happening while replaying what terrified you in the first place and then it plays over in your head over and over and over. Reliving the event every time.

Wednesday, August 24, 2016

Headaches and the ELTA bash.....

You are probably wondering what this blog about a life with headaches and pain has anything to do with my car club that I am a member of. Let me enlighten you.

Saturday, August 20, 2016

GO F*(% Yourself Blog....I take advantage of what you take for granted.

Quite the blunt statement with such profanity.....well there is a reason.

This blog is not written in haste in anyway shape or form but a true reality of survivors lives dealing with the general public.

Friday, August 12, 2016

Celebrities, average Joes, survivors & supporters on Cluster Headaches.Updated !

I have had some great success with awareness and advocacy in the last 11 years of being sick.
And some might ask why tell a celebrity who isn't sick about a disease they never heard of? Its the same reason I tell average Joe's about Cluster Headaches. Except celebrities have the ability to reach a greater audience than I ever could. And I will explain that a a bit further.

Monday, July 11, 2016

Sunday, June 5, 2016

Coping with Cluster Headaches

Coping with Cluster Headaches.....

If you are reading this, and have cluster headaches. You are coping right now.

Saturday, May 28, 2016

Buster

Buster, re born Nov 18,2012 and passed May 28,2015. 1 Year ago today.

Why are you reading about a dog that died? What is it in relation to cluster headaches?

Grab a tissue box, it will tug your heart strings.

Sunday, April 24, 2016

Never miss an opportunity

I don't know if its because I am older and I think ahead or what but I never miss an opportunity to help others if I can.

Tuesday, April 5, 2016

I survived 44 Years.

44 years ago my mother. Mein klein muter (German for my little mom) gave birth to a healthy baby boy

Monday, March 14, 2016

CH Readiness KIt

Having a neurological disease is a way of life. Always preparing yourself for home or not home attacks.

Friday, March 4, 2016

Wednesday, February 3, 2016

Dedication to those who help with us.

Those left behind from suicide often leave devastating effects on loved ones. Family members often question why or what they could have done further. Some didn't know. Some didn't see it coming or believe it was that bad.

I have seen what suicide causes.

Tuesday, January 26, 2016

Death, life after.....

This disease is 200x the national suicide rate. I have lost sooooooo many Cluster Heads. And sadly will loose more.

Friday, January 15, 2016

Why me?

Why me? If you have any type of disease, illness, ailment. I can almost bet you have at some point asked yourself, why me?

A question that has been asked since time began....