My name is Erica and I was recently diagnosed with CH after having been misdiagnosed for close to 15 years. I am so grateful to have found your blog. Thank you so much for this space, your videos, and your advocacy for those of us who are unable to explain how truly debilitating this is. I tried to join a CH support group on facebook but after explaining my diagnosis and current treatment plan, I have yet to be accepted. I look forward to looking back through your blog and learning from your experience. I am not chronic like you, but I am currently several weeks into an episode and question how much more I can take. I live in a small town and no one understands. Thank you SO much. I am so grateful for what you're doing to bring awareness.
Hi Tom,
ReplyDeleteMy name is Erica and I was recently diagnosed with CH after having been misdiagnosed for close to 15 years. I am so grateful to have found your blog. Thank you so much for this space, your videos, and your advocacy for those of us who are unable to explain how truly debilitating this is. I tried to join a CH support group on facebook but after explaining my diagnosis and current treatment plan, I have yet to be accepted. I look forward to looking back through your blog and learning from your experience. I am not chronic like you, but I am currently several weeks into an episode and question how much more I can take. I live in a small town and no one understands. Thank you SO much. I am so grateful for what you're doing to bring awareness.