For fellow sufferers...." How many times have your heard?"....oh my buddy gets those?
or "Its just a headache, and it can't be that bad"
or "You cant be serious?"
First of all." No he doesn't and yes it is!!!"
I have lost jobs, what I thought were good supportive friends, and get a deer in headlights look when I try to explain to strangers when they ask and I explain its the most painful on the planet.
I have even blogged about it. Advise read my blog or goggle it, wikipedia it....still same reaction
I am sure this scenario and many others have happened to you fellow cluster heads.
Dealing with my attacks, fatigue, stress adds to being short with people.
Is there a different way to tell people...."For frig sakes listen to me, I am trying to tell you I am an expert. Listen to me you buffoon,stop arguing with me and pay attention to what I am trying to tell you." Some days I wanna smack someone in the face for not listening. They may hear me but they are not listening.
I am at my wits end....I try to offer links.Videos....people just don't friggin listen
My family sees what I deal with. Shake their head in disbelief.
Others argue constantly and battle like they remotely know what we have. Like a F*****king Aspirin is gonna fix it.
So I posted this paragraph over on a Cluster Headache forum....and I got a fair amount of responses. This one in particular really captivated me. With her permission I am cutting and pasting her exact response to my topic. And this is VERBATIM her response
|Feel free to use these signs. A few people I know should read them and understand them.